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Brian Enos's Forums... Maku mozo!

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Childhood should be a time of carefree fun and joy. Sometimes life just robs kids of this.

She is the niece of a close friend of mine and she is a joy to be around.

Dravet Syndrome is a ver severe form of epilepsy.

This morning she started to have seizures again and so far has suffered through 14 or 15 of them.

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The family is wanting to try an experimental drug that is not paid for by insurance.

ok..here is the fine print.

would you all share this link. Hoping to see the power of social media.


Thanks to you all for reading.

Edited by eerw
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