eerw Posted January 8, 2011 Share Posted January 8, 2011 (edited) Arrrggghhhh. Childhood should be a time of carefree fun and joy. Sometimes life just robs kids of this. She is the niece of a close friend of mine and she is a joy to be around. Dravet Syndrome is a ver severe form of epilepsy. This morning she started to have seizures again and so far has suffered through 14 or 15 of them. The family is wanting to try an experimental drug that is not paid for by insurance. ok..here is the fine print. would you all share this link. Hoping to see the power of social media. http://apps.facebook.com/fundrazr/activity/b2f5623a5f6b4b84a5e9cc6df89977c8 Thanks to you all for reading. Edited January 8, 2011 by eerw Link to comment Share on other sites More sharing options...
G-ManBart Posted January 8, 2011 Share Posted January 8, 2011 Done. I shared it with all friends, and friends of friends. If everybody does that, we'll get visibility to many thousands of people. R, Link to comment Share on other sites More sharing options...
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