DCMJ Posted July 16, 2012 Share Posted July 16, 2012 Spent a good portion of this week bouncing between work and visiting my disabled 21-year-old in the hospital. Watching this young man struggle to do the simple daily tasks we take for granted wears you down. Knowing that all you can do is make his life fun and as simple as possible, more so... Worst of all that he inherited it from his parents and there is little we can do beyond that? Yeah, that one is the mother of all. He's back home with his mom, on new meds and changes in his existing "cocktail". Doing much better than I've seen him do for some time. That's all I can expect, but that's huge. I hate this damn disease and what it has done to my son. Link to comment Share on other sites More sharing options...
donnyglock Posted July 16, 2012 Share Posted July 16, 2012 Man my heart goes out to you and your family. Link to comment Share on other sites More sharing options...
Merlin Orr Posted July 16, 2012 Share Posted July 16, 2012 Words fail...... Link to comment Share on other sites More sharing options...
nick romero Posted July 16, 2012 Share Posted July 16, 2012 "DCMJ" My heart and prayers go out to you and your family. You are a great father for doing your very best on a daily basis to make his life as happy and enjoyable as possible. keep up the good work and god bless! Link to comment Share on other sites More sharing options...
Carmoney Posted July 17, 2012 Share Posted July 17, 2012 Pretty much makes all those typical whiny-ass hate posts small by comparison, doesn't it guys? Best of luck to you and your son. Link to comment Share on other sites More sharing options...
AlamoShooter Posted July 17, 2012 Share Posted July 17, 2012 words fail my thoughts , But I feel humbled by your strength Link to comment Share on other sites More sharing options...
DCMJ Posted July 18, 2012 Author Share Posted July 18, 2012 Thanks to everyone who took a moment to reply and the PM's received. My son is home and doing well, the frustration is back in it's usual carry-on and this thread has served it's purpose. I have friends that lost children in their teen's or early 20's. I feel lucky to still have my son even if I mourn each new deficit like a small death. Any day with him in my life is a better day. So with that -- Closed Link to comment Share on other sites More sharing options...
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